Road Traffic Accidents in India

I am a survivor of two road traffic accidents (RTA), both of which changed me life forever. The first one happened when I was 22 years old and it resulted in my losing use of my physical form as I become disabled for life. The second happened when I was 39 years old that resulted in my losing my soul as I lost my soul-mate in it.

It is two years to my husbands death, and as I drown in sadness and hopelessness, I cannot but help feel angry at the way our country functions, things that are important to us as a society, government corruption and apathy towards its citizens.

India has the largest number of deaths due to road traffic accidents. According to a WHO report ‘13 people die every hour in RTAs in the country.’¹ I do not have statistics of people who become permanently disabled due to RTAs, though the biggest cause of spinal injuries in India is RTA. I do not even have statistics of families that are devastated because of the demise or permanent disability of their loved ones in a RTA.

But does the government care? Is it an aggressive issue in their road and highway building strategy and process to reduce RTAs? The automobile industry is booming with India becoming the sixth largest motor vehicle/car manufacturer in the world in 2010 and is expected to rise to the fourth position by 2014.²  Sure this is a clear indication of India becoming a developed nation but on the other hand if we reviewed our public transport system, that can reduce the traffic on roads, we would by way down on the international scenario, so to me it seems like a lopsided economy favouring industry, which I have nothing against as long as the economy favours social growth as much.

India spends less than 1% of its GDP on health care of its people. It may sound good but considering India has the highest population in the world, the per capita expense is very low. The state of trauma care in government hospitals in our country could not get worse. To say that the severity of my disability and the death of my husband are a direct outcome of the horrible attitudes of the doctors where all patients are like guinea pigs and the non-existent nursing caret in government hospitals where one is taken to after the accident. Remember most often one is in no state after an accident to take decision, therefore being taken to a government hospital is an automatic process.

Cost of private health care is soring high. Considering that the government doesn’t have adequate infrastructure to cope with the national health care needs, then how can they allow private health care to become so expensive. What right does the government have to levy such high taxes on private healthcare services?

Emergency health care, availability of ambulance with trained staff on highways is still a dream. My severely injured family was transferred from one ambulance to another at least thrice before finally reaching a hospital and it took about ten hours after our accident. All the ambulances were nothing but regular vehicles with not even oxygen cylinders on board. We travelled bleeding, unconscious and mourning on stretchers for ten hours alone without even one paramedical person with us. The only person traveling with us was the driver.

Lets face it Road traffic accidents in India are a high probability. Let me also mention without mincing my words you that in the present scenario there is no value for any body’s life in our society. Therefore, I would really like to urge the society as well as the government to take cognisance of the high number of accidents happening in India work towards reducing them and improving trauma health care.

reference: 1 http://articles.timesofindia.indiatimes.com/2009-08-17/india/28181973_1_road-accidents-road-fatalities-global-road-safety

2. http://www.knowindia.net/auto.html

Fight Against Corruption

Today the country stands united in the fight for corruption. For me the fight is not limited to the Lokpal Bill and Anna Hazare. No doubt he is the man who has got the country together on a common platform in a non-violent way and I admire for that.

But for me unless the fight is much larger and more personal to each one of us it may dwindle. The fight for corruption has to also include the fight against discrimination that various marginalised groups face. According to me when our society is matured enough to fight together non-violently, then it is matured enough to know that discrimination has to be looked at the highest corrupt practice.

How can anybody justify excluding some groups of people from mainstream life and say it is not corrupt? Discrimination is a practice not only adopted by the government in the way they design their laws and policies, but also something that is practiced by each one of us for our own benefit or to avoid added effort.

My personal fight is against the discrimination of disabled people. Today just because of the way our societal practices, laws and policies, environmental design, technology design, cultural attitudes are, people with disabilities are discriminated at all fronts.

None of the schools, colleges or universities have infrastructure that can include them. Those with disabilities are forced into a home education instead of being allowed the same experience as everyone else. Additionally in the way education is imparted its inaccessible to most.Getting a good employment is rarely possible – disabled people are considered to be incompetent because of their physical form even if their ability supersedes the ability of  non-disabled people. Finding a non-disabled friend is like a dream, the attitude towards the disabled remains to be either charitable or indifference.

With bizzare government policies like awarding a money prize to people who marry a disabled person, how can we ever thing of their inclusion? Is this policy in itself not corrupt especially putting a woman with disabilities at a greater disadvantage?

But then, who cares if the disabled person cannot use the public transport system? Who cares if they remain uneducated, unemployed, alone and excluded for life? Who cares if they remain as to be the poorest section of the society?

The fact of the matter though remains that if it doesn’t matter to anyone then as a society and as a country we are all at a loss.

There is more than 2% of our population is disabled according to our census. According to UN 10% of world population is disabled and one third of this number resides in India. Imagine if is this large no of people are dependent on the system and public money instead of being contributory to the system – then who is at loss?

Societies indifference to the cause will not help anybody because if they are not mainstreamed then the cost upkeep of disabled people happens from societies money collected as taxes. So take action now and know that inclusion is the only way forward.

An account of my visit to a government office

Today I had gone to the Ministry of Social Justice and Empowerment (MSJE), Shashtri Bhawan to hand over a nomination of a colleague for the National Award. What an experience – it will stay with me for quite a while. It justified yet again my poor opinion of the entire government system.

As I reached there in a car the security guard at the gate asked me to get a pass made from the reception to allow my car in. The driver reversed and we drove around aimlessly trying to find the reception the guard mentioned. It turned out to be some barracks that had been put up next to the entrance. What helped in identifying it was a little common sense and some trial and error. Of course there was no signage to find them.

I sent my carer in to get the pass made because as a wheelchair user it was not accessible to me. It took her twenty minutes to get an entry pass made since by the time she reached it was already 1 pm and like robots that had been functioned in a certain way, everybody seemed to stop working. I wonder the chaos that will happen if the entire country was functioned that way.

Finally she came with the pass and we drove into that important building. I tried entering from the main entrance that lead to the MSJE (no signage was visible). The security guard at the entrance stopped me and directed me to the Facilitation counter instead saying that they would accept the nomination.

So again I got moving trying to locate the facilitation counter for MSJE this time. As before the only way to find it was asking the people around for directions. The facilitation counter was inaccessible too. So I stood outside the office and hailed at the staff to help.

The facilitation staff sent us right back saying that the reception, this time the one located outside the building entrance,  will open at 2 or 215 pm and I should get a pass made and go straight up and submit the form to the Section Officer. It was just 130pm at that time and this mean I needed to wait. The lack of ownership in the way each person performed was irritating me. I asked him sternly whether it was going to be 2pm or 215 pm as for me 15 minutes were important. Unnerved by my sternness ‘2 ‘ he responded.

I pushed my chair right back. As I wheel back Kapil Sibal Hon'ble Minister of Science & Technology and Earth Sciences, got out from his car right in front of me. Seeing this arrogant, rude and crude minister come in my way irritated me a little more.

As aggressively as Mr Sibal I said to the security guard that the facilitation officer had sent me right back and I had to enter now and I was not going to wait till 2 or 215pm. Well the aggression worked.

Again asking for directions from the people around I reached the specified room. As I entered I was shocked to see the state of this government office. There was a dirty stale stench in the room that reminded me of toe jam. As I entered a man was sprawled on two chairs sleeping. I had to squeeze my way in so as not to disturb his slumber. All the women were sitting together at one end of the office sharing lunch and chit chatting. Some other staff had head phones on were glued to the Internet watching live news of Anna Hazare’s arrest.

I asked for the officer I needed to hand over the nomination to the section officer. I was directed towards a passage that again was not accessible for me. Somehow I did manage to hand over the nomination finally. Now after having gone through this sad experience where everything from the building to the systems were inaccessible, I really hope that my colleague receives the much deserved award.

It was eerie in some ways. Each government employee had the same complacent expression on their face as though there was nothing could touch their incompetency. There is no reason for them to worry about the anti corruption movement presently staged in India; or should they be worried? 

Universal Design India Principles

Co-authors: Abir Mullick, Anjlee Agarwal, Balaram S., Debkumar Chakrabarti, Gaurav Raheja, Haimanti Banerjee, Rachna Khare, Ravi Shankar and Shivani Gupta (In alphabetical order)      copyright: National Institute of Design, Ahmedabad Disclaimer 1. The UDI principles are stand alone universal design ideologies that  focus in Indianness and inclusivity as they relate to age, gender, disability, caste, class, religion, poverty and urban/rural background. 2. UDI principles neither make any connection nor build on the 7 Universal Design Principles. They recognize the overarching importance 7 Principles in the field of universal design.       Principles     Description and     Guidelines  1     Equitable/ Saman      The design is fair and non-discriminating to diverse users in Indian context      •     Avoid prejudices against people of all ages, gender, disability, sizes, caste, class and religion. •     Consider different capabilities of users and build in many levels of engagement. •     Provide choices in access and use thru flexibility and customization. •     Allow personalization through inclusion of adjustable and adaptable options. •     Provide equality in challenge, opportunity and energy requirement. 2     Usable/ Sahaj      The design is operable by all users in Indian context     •     Provide independence, comfort, safety and support during use. •     Facilitate access, operation and convenience by diverse users. •     Include adaptations for those experiencing difficulty in use. •     Provide clarity in use, operation and maintenance to minimize instruction and avoid confusion and error. •     Adopt simple means to overcome complex operation. •     Follow cultural norms to address user expectations. •     Offer multi-sensory feedback to point in the right direction.   •     Build in intuitive operation and innate understanding of problem. •     Allow easy adaptation to facilitate use by people with diverse abilities. •     Prevent costly mistakes and untended consequence from misuse. 3     Cultural / Sanskritik      The design respects the cultural past and the changing present assist all users in Indian context     •     Maintain social and traditional qualities in design. •     Include Indian idioms to make historic and social connection. •     Present in many languages for inclusive comprehension. •     For all castes and society levels. •     Respond to local context and conditions. •     Employ appropriate technology to match user expectations. 4     Economy/ Sasta      The design respects affordability and cost considerations for diverse users in Indian context     •     Ensure affordability, durability and maintainability. •     Use local materials for energy savings and cost effectiveness. •     Focus on low unit cost through wide distribution. •     Adopt modular approach to offer choice in features and price range. 5     Aesthetics/ Sundar       The design employs aesthetic to promote social integration among users in Indian context     •     Employ aesthetic to enhance universal appeal and use. •     Allow personalizing aesthetics through flexibility, adaptability and modularity of colour, form, texture and interaction. •     Employ appearance to inform use and safety. •     Bridge wide range of meaning and comprehension gaps.

Disability Inclusion in Drought and Food Crisis Emergency Response

Disability Inclusive Action Plans

• Amend ‘Rapid Assessment’ forms to ensure pro-active registration of persons with disabilities, for all relief, recovery and preparedness activities.
• Set indicators which identify approximately 15% of the target group as persons with disabilities and older persons. Disaggregate data to monitor how effectively the program is reaching this group.
• Prioritise vulnerable groups including persons with disabilities and older persons through separate distribution queues. Ensure children access Vitamin A and vaccination campaigns.
• Where possible, involve persons with disabilities and ‘Disabled People’s Organisations’ in planning and operations in order to benefit from their expertise.
• Identify service providers who can assist in providing outreach and follow up with persons with disabilities who are unable to attend distribution points.
• Ensure linkages with existing community based services to build up a support network.
• In camps, locate persons with disabilities close to water, sanitation, health posts, food and fuel distribution points, and to well lit, secure areas.
• Prioritise persons with disabilities for reunification with family, carers or community members, who know their individual requirements.
• Prioritise children with disabilities for routine protection monitoring and ensure they are able to access and do access ‘child friendly spaces’.
• Ensure that Gender Based Violence protection activities are including women with disabilities.
• Meet the specific needs persons with disabilities and older persons may have, including for nutrient dense foods, sunlight exposure for Vitamin D, feeding spoons or straws, access to essential medications and mobility devices (1).
• Provide information about the availability of food and services through various formats accessible to persons with vision, hearing or intellectual impairments.
• Ensure distribution points, water, sanitation and other facilities are physically accessible, through the provision of ramps, rails, appropriate seating and adapted water and food storage containers.
• Ensure all persons have the means to carry supplies to their homes or shelters.
• Be patient and respectful to people with psychosocial or intellectual impairments, or ask if they would like to bring someone to represent them.

• Ensure inclusion of persons with disabilities in all longer term food security and community development initiatives, including in livelihood (e.g. micro-finance, agriculture, gardening, livestock keeping, paid employment), education, health, social inclusion and empowerment (Community Based Rehabilitation approaches).
• Advocate strongly to governments, donors and NGOs for disability inclusion in all emergency, disaster preparedness and development activities.

Further information: Handicap International have prepared a comprehensive ‘Disability Checklist for Emergency Response’ which can be accessed athttp://www.handicap-international.de/fileadmin/redaktion/pdf/disability_checklist_booklet_01.pdf

Disability and the UK Visa

I had been invited for a business meeting to London on a short notice. I knew getting a visa for UK was not an easy task at all and needed time. I asked the company I was going to meet and who was sponsoring my trip to send invitation letters for me and my carer ASAP. The invitation letters arrived and they stated in very clear English :

“Shivani Gupta a leading authority on accessibility in India ..…… In this respect her presence is urgently required for a meeting in London from ………(date). Since Shivani Gupta is disabled she will need to be accompanied by her carer (carers name)

All expenses for both of them regarding travel and hotel accommodation will be borne by our company.”

I had travelled to Spain with my carer just a couple of months back and had the entire set of all other documentation required ready with me. I filled our visas under ‘Business Visa’ category as the invitation letter said that I was travelling for a business meeting my personal carer was to accompany me. Along with it I gave a visa fees of about Rs5000/- each and all other financial documents they required.

At the time of submitting our forms the lady at the counter informed me that I would need to fill another form for my carer as she was going to be in my service during the travel. And that the fee for the other visa form was about Rs 18,000/- 

I was shocked. I thought she didn’t understand my case. I tried to clarify

‘…bbut she had an invitation letter in her name stating that her trip is sponsored by the company and we were going to be in UK for only 4 days.’

‘I know’ she responded, ‘but you still need to fill the other visa form’

‘but Rs 18,000/- for 4 days……doesn’t it sound ridiculous?’

‘Its your wish madam’ she responded ‘you can fill the business visa form if you like, but I am just informing you.’

Rs 18,000/- for 4 days was not something I could afford, so taking a chance I filled the business visa form, deposited Rs 10,000/- as fees for both of us. I was positive to get the visa as:

1.     We had an invitation letter for both of us

2.     We had adequate supporting financial worth papers.

3.     My carer had lived in the UK with me for nearly 2 years in the past and

4.     She had a live Schengen visa in her passport.

To my disappointment her visa was rejected on the pretext that she wasn’t going for a business trip in fact was traveling in my service as a carer. Sure enough bit in other words it meant that if I had filled the Rs 18,000/- visa form she would have got the visa.

I found the matter very discriminatory especially after the UNCRPD is in force that talks about non-discriminatory immigration rules.

Is it not discriminatory that I am required to pay a heightened visa fee of Rs18,000/- for my personal carer’s visa just because  I cannot travel without her?

It is more like a fine I need to pay to the UK Government because I am disabled and require a personal carer.

The repercussion of this on me was that I was unable to travel also and had to miss my business meeting and miss the future business prospects just because my carer was refused a visa. Is it fair?

Air Travel with my Electric Wheelchair

I started using an electric wheelchair nearly 3 years ago. Over time it has changed my output, my independence, my social life, in other word it has changed my life for the better. For two years I used my electric chair only in and around home as electric wheelchairs are heavy and not always folding making them difficult to transport in a regular car.

Just a couple of months back I decided to travel with it to Spain. This was the first time when I took my chair by flight. I had no idea how it was all going to work out with the airlines but considering it was international travel, I knew it would be fine. Sure it did work out well and I am glad I decided to travel in it because air travel was convenient and to top it I used it in train as well as taxi travel. I other words I did not need to shift out of my chair at all while in Spain. This trip gave me a lot of confidence about traveling with my electric wheelchair.

Next it was time to try travelling with the electric wheelchair within India. On one occasion when I was going to travel by Spice Jet, they refused to carry the chair if it did not fold.  Another time while I was flying Jet lite the budget airline owned by Jet Airways, they were most comfortable carrying my non-foldable 60kg electric wheelchair. The only thing they wanted to ensure was that my chair had dry batteries. It was easy and my chair reached the destination undamaged.  I was impressed by the Jet Airways and defiantly know that Spice Jet and Indigo are not the best airlines for disabled travels.

Following the enactment of the Civil Aviation Requirement for Carriage of disabled people, the only two notable benefits that I can see is 1. As a disabled person I can refuse to sign an indemnity form that frees the airlines from the same commitments it has towards a disabled person as it has for all other passengers and 2. My being able to carry my electric wheelchair easily on a budget airline even if it is on one airline.

Shivani Gupta
AccessAbility
www.AccessAbility.co.in