Wednesday, June 18, 2014

Release of my new book - No Looking Back - a true story

It was recently that my book 'No Looking Back' was published by Rupa Publication was released by Mrs Sharmila Tagore. Release event coverage

(L to R) Shohini Ghosh, Sharmila Tagore, Shivani Gupta

I am sharing the blurb of the book

What would you do when you have lost all hope and tragedy strikes not once but twice? Give up? Shivani Gupta is a living example of how a woman goes on to live and achieve and make the lives of others better. No Looking Back : A True Story is inspiring and of course pricks your heart.
Summary of the Book
Twenty-two-year-old Shivani had thrown a party one evening—and awoken the next morning in hospital, her spine and her dreams shattered by a car crash. 
Paralysed and then wheelchair-bound, it took Shivani years of pain, struggle and determination to regain control of her life and her body; to demand and receive respect from the world; to gain acceptance from within and without; to find love and happiness. 
Then tragedy struck again. As the newly married Shivani drove to Manali with her family, an oil tanker collided head-on with the car; bedridden once again, she watched helplessly as first her father-in-law and then Vikas, her husband, succumbed to their injuries. And, yet, Shivani refused to surrender—she would not let her inability to walk keep her from achieving her ambitions. 
No Looking Back is a deeply moving and inspiring narrative about surviving the challenges of disability in a country that takes little account of the daily difficulties and indignities faced by approximately fifteen per cent of the world’s population, whether in terms of infrastructure, legislation or awareness—a country that appears to believe that disability equals invisibility from the public discourse. Undeterred by the hand fate had dealt her, Shivani Gupta has chosen to champion the cause of the disabled everywhere and is today one of India’s best-known accessibility consultants. Her life is an extraordinary testament to true courage and the indomitability of the human spirit in the face of overwhelming odds.
Paperback and e-book is available at Amazon and Flipkart

Wednesday, February 27, 2013

Mauritius reservations to the CRPD and its impact on rights of persons with disabilities

It was recently I had an opportunity to visit Mauritius and interact with the warm people there. My interaction was mostly with people with disabilities ands their organizations. There struggles and challenges seemed to be the same as ours and their advocacy movement had familiar traits. I for one felt very at home and one with them.

It was during our discussions while preparing a stakeholders report from the Universal Periodic Review of Mauritius did we realise that Mauritius while ratifying the convention had three reservations. The more I think of these reservations the more amazed I get by how the State could ratify on one side and make these reservations they did on the other sides. The reservations seem to go against the principles of the convention. I cannot help but express myself aloud my opinion of these reservations on people with disabilities in Mauritius with a Disclaimer that I am not an expert in human right law and the expression is solely my thoughts.

Reservation 1
At the time when the State signed the convention in 2007 put a reservation on Article 11 Situations of risks and Humanitarian Emergencies. The state said that "The Government of the Republic of Mauritius (…) does not consider itself bound to take measures specified in article 11 unless permitted by domestic legislation expressly providing for the taking of such measures."

What this reservation seems to imply is that the State will not take any measures to ensure the protection and safety of persons with disabilities in situations of risk, including situations of armed conflict, humanitarian emergencies and the occurrence of natural disasters unless their domestic law specially suggests that they must provide them protection and safety to persons with disabilities.  So would this on ground mean that at the time of an emergency the State will protect all other people except persons with disabilities?  More over with this reservation there is an implication on Article 9 1(b) that talks about removing barriers to make emergency services accessible.

Reservation 2

For accessibility they say -  “The Republic of Mauritius declares that it shall not for the time being take any of the measures provided for in Articles 9.2 (d) and (e) in view of their heavy financial implication.”

Accessibility for all persons with disabilities is a pre-requisite for their inclusion. Without making provision for accessibility realization of a number of articles in the convention including living independently, education, employment, sports and culture, personal mobility, access to justice etc. is not possible. Accessibility is one of the cross cutting articles and is also one of the general principles; hence a reservation on any aspect of accessibility will effect most other articles.

Article 9 2(d) talks about making public signage available in public places available in braille and in easy to read formats. And article 9 2(e) talks about availability of live assistance and intermediaries such as sign language interpreters, scribes, and readers etc. to make facilities more accessible.

These reservations create discrimination between the disability constituencies as signage in Braille is largely used by blind persons and easy to read formats is most required for persons with intellectual disabilities.  Also while live assistance and intermediaries may required by any person with disabilities, but they are very much required for Deaf persons, blind persons and deafblind persons to enable them to have access to information and be able to communicate effectively.

Reservations to these two articles would have an adverse effect on the implementation of Article 21 of the convention that apart from other things talks about recognition and promotion of sign language and braille to enable all persons with disabilities to have freedom of expression and opinion, and access to information.

Additionally “heavy financial implication” as a reason for these reservations seems unfair considering that article 4.2 of the convention requires the state to a use to maximum of its available resources to progressively achieve full realization of economic social and cultural rights and without accessibility these rights cannot be achieved.  Considering that implementation has to be achieved progressively and not be achieved overnight then why have the reservations at all.

Reservation 3
With regard Education, they have a reservation to Article 24.2 (b), the Republic of Mauritius has a policy of inclusive education which is being implemented incrementally alongside special education.”

In discussion the DPO’s expressed that while education is free for all children but for children with disabilities since they are admitted only to special schools run by NGO’s, they were required to pay some amount towards their education for books, special aids etc. Moreover since few communities have special schools there is an additional transport costs that parents of children with disabilities have to incur. This transport costs are high as the bus company charged for the entire year including the holidays.

Children with disabilities having to pay for what is free for other children is discriminatory. Moreover inclusive education is not being incrementally provided as claimed by the state and how can it be if there is a reservation to Article 9.2(e). For inclusion in schools there is a definite need for live assistance and intermediary services.

Having put a reservation on the article 24.2(4) that says “Persons with disabilities can access an inclusive, quality and free primary education and secondary education on an equal basis with others in the communities in which they live;” the State seems to have comfortably abstained from its duty to provide inclusive education. Special education is highly prevalent and that too not available in the child’s community. Moreover special education is of poor quality and costs money to children with disabilities. It seems difficult that this situation will change in the near future as by making this reservation the state seems to have boldly stated their plan to continue with special education and discriminatory practices.

The first step towards inclusion must be for the State to not have such reservations. These reservations make their intent clear hence it is important for the DPO’s to advocate and have these reservations taken away thereby, taking a step closer to progressively achieving full inclusion of all persons with disabilities.

Sunday, February 3, 2013

The Universal Periodic Review and Disability– an Indian experience


The Universal Periodic Review (UPR) is a new and unique mechanism of the United Nations, which was created in March 2006.   Currently, no other universal mechanism of this kind exists. The UPR is an automatic process of peer reviews the human rights practices of all 192 UN member states in the world, once every four years. The UPR is a significant innovation as it is is based on equal treatment for all countries. 
The UPR is a State-driven process under the Human Rights Council that provides the opportunity for each State to declare what actions they have taken to improve the human rights situations in their countries and to fulfill their human rights obligations. There are three reports that are prepared and made available on the website of Office of High Commissioner of Human Rights (OHCHR) for each State before the their UPR session namely:
1.    The report prepared and submitted by the State
2.    The Stakeholders report – a compilation of several reports received by the OHCHR from various national NGO’s and the NHRC
3.    A UN report - compiled by the OHCHR based on information contained in the reports of treaty bodies, special procedures, and other relevant official UN documents.

My Experience of engaging in the process

My experience of the UPR began when I attended a meeting organized by the Working Group on Human Rights (WGHR) who were in the process of compiling a stakeholder report and therefore were consulting with different stakeholders. It was my first experience of working with a group that represented stakeholders from varying human rights organisations such as women, children, LGBT, Dalits and many others.

My biggest realization from attending this consultation was that everybody was talking about their issues and in spite of disability being such a cross cutting issue it is alien for everybody. This is to say the women’s organisations are not talking of disabled women, children’s organisations are not talking about disabled children and so on. Therefore we need to be there to represent our issues ourselves. Members of the National Disability Network (NDN) were present in all WGHR consultations yet their final report included nothing on disabled. I believe it was so because it was the first time for all of us and with regular interaction I am sure things would change.

Following this were the regional and national consultations orgaised by the National Human Rights Commission (NHRC) for the preparation of their report. Here again no body understood disability issues and in spite of participation of disabled persons and DPO’s in all consultations their report had negligible mention of disability issues.

The National Disability Network was keen to make a strong presentation on disability and therefore decided to draft our own stakeholders report. With inputs from over 20 national DPO’s the NDN prepared a report focusing on disability issues. It was with great delight that we noticed an inclusion of one recommendation from the NDN report. Though only one recommendation was taken into the main stakeholders report but it represented the recognition of a disability organizations network for the first time.

With the support of the International Disability Alliance, I got an opportunity to meet with persons working on human rights and disability issues as a representative of NDN. I met with five missions in Geneva namely – Denmark, Sweden, Austria, Maldives and Canada. It was in these meeting that I gained clarity of the process and how it works. I also realized that the three reports though important yet had limited function and the actual advocacy began a month before the actual UPR session was to happen. How it works is that the missions in Geneva and elsewhere sends recommendations to their home office, who finalizes them based on diplomatic relations with States being reviewed and the thrust areas of the country preparing recommendation. These recommendations need not always be dependent on the three reports.

India is going to have its second UPR in the 13th session in May 2012. The country will be reviewed on how it has progressed on recommendations made during the first cycle additionally there will be an opportunity for other States to make new recommendations. Each country’s UPR session is for three hours, which is podcasted live. Every State will have not more than a minute to make their points and therefore the recommendations they make have to be very crisp.

During my meetings, I did get a confirmation from the Austrian and the Maldives missions that they would make recommendations related to disability to India at the upcoming UPR. This would be an achievement from the last UPR where India had zero recommendations pertaining to disability. There is further opportunity for getting more recommendations by meeting various missions in Delhi and presenting our issues to them.

Main leanings from my participating in the UPR process

1.    UPR is a big and the only one of its kind international advocacy opportunity for the disability sector to highlight our issues and make them heard by our government especially in a scenario where the UNCRPD Treaty body would review India several years after our State report is submitted owing to their work backlog. Further the UPR recommendations on disability will be fed into the CRPD treaty body report.
2.    Regular and constant networking with other human rights organisations is crucial for us to ensure integration of our issues and getting more support and partners to have our concerns heard.
3.    Our preparation for the UPR has to begin well in advance by sending in the stakeholders report before the submission deadline and then advocating with various missions at least two weeks before the actual session.
4.    We need to provide specific, crisp and concrete recommendations to the missions that are as cross cutting as possible. Related background material on the recommendations would make acceptance of our recommendation easier and better.
5.    Different missions must be provided with different recommendations, as it would be an opportunity lost if all States make the same recommendation to country being reviewed.
6.    Most importantly it is a process that gives us an opportunity to unite and review our specific matters together. It requires us to recognise each other’s issues and work on them collectively as an individuals voice has no place in the process.